On Monday, I went in to get a root canal and a temporary crown and I took Colby to the foot doctor and learned that he needs foot orthotics from Dr. Scott. Then on Tuesday, Jason learned that while he was planning on changing jobs on Aug 1, his old boss wanted him to leave on Tuesday. It was actually a relief for Jason, but is still quite stressful. (Especially since his old work's Lagoon day was Wednesday and had the potential to be very awkward- but we focused on celebrating Grandma T's birthday and it worked out okay.) Wednesday was also the first day that Dallin had a fever. I was a super good mom that day and gave him ibuprofen and drug him around Lagoon anyway. Oops! He did actually go on rides and alternated between sitting down and resting in the middle of Lagoon and going on rides and having fun.
Anyway, the rest of this post is all the medical drama of this week, so if you're not a nerd like me, feel free to stop reading. Just know how grateful I am that everything is going to be okay, all of it, always. Things work out and we always have more to be grateful for than to complain about.
So on Thursday, I was living life as usual and had gone visiting teaching. I knew Dallin wasn't feeling well and had a fever, but he was taking it easy. When I got back around lunchtime, he was complaining about his neck, and as I checked it, I discovered that the lymph node on his left side was about the size of a bouncy ball. It was huge, and there was no definition between his jawbone and his neck. I called the doctor, and we headed in. (Meanwhile, back at the ranch, my brother Jared was arriving from Minnesota for a visit and we were having a BBQ at our house that night). At the doctor's, he prescribed an antibiotic because of the possible infection in the lymph node itself and he ordered some blood work to check for Mono and some other things and we learned that he was negative for strep. As I was sitting him up on the doctor's table though, we noticed this weird rash on the inner part of his legs that didn't resemble any disease or reaction and wasn't bothering him. So we got the blood work, picked up the prescription, headed home and put him to bed. Around 11 that night, he started complaining about the rash and I noticed that it was all raised. Weird. Then at about 2 in the morning when he was throwing up, I noticed the rash was spreading. Here is a freaky picture of it.
Friday morning, he is feeling the same with the fever, around 104 today, rash, bloodshot eyes, swollen lips, and nausea and vomiting and not and wanting to move around or walk. We had Brother Partridge come over and help Jason give Dallin a blessing. I call in to the doctor about the rash and they order a steroid cream and are wondering if the antibiotic is making the rash worse. Jason stayed home and took care of him and the rest of us went up to the Deer Creek with my brother and family and had a great day. I tried paddle boarding and loved it, but of course I feel guilty about all that looking back now. We picked up Amanda on the way home and brought her to our house too. Dallin was the same when we got back, and he threw up a couple more times in the night.
Saturday, day four of the fever, more vomiting, his eyelids are even red now, and he is having difficulty walking. We keep trying to get him to drink and stay comfortable. I went to a Relief Society activity for a bit and Jason took him over to our friend Cami who is in PA (physician's assistant) school right now. He was actually going to get some suitcases from her because we were supposed to leave for the cruise on Sunday night, but Jason thought she might want to look at Dallin while he was there. About an hour after that, Cami has done some research and called a PA she works with, sent her a picture and they both independently came up with a concern for this weird disease called Kawasaki. Never heard of it. But I learned that it is an inflammation of the blood vessels in the body and can lead to heart damage, so we need to follow up. What??!! So I take him into our pediatrician's office again and the PA feels so bad because he didn't realize how bad the rash was. After consulting with another PA there and the doc on the phone, they decide to send us up to Primary Children's ER to have him checked out for this Kawasaki disease. At the ER, they have to get a wheelchair to get him to his room because it is bothering him too much to walk. We then spend the next 8 hours doing blood work and an x-ray and ruling out things like mycoplasma pneumonia, rocky mountain spotted fever, scarlet fever, allergic reactions and a bunch of other stuff. Three different doctors come talk to us trying to figure out if this is Kawasaki or not. The real problem is that a defining characteristic is 5 days of fever and we are on day 4, and his rash looks a little different and he is older than the usual patients with this, and his tongue and mouth aren't as inflamed as usual. And then to throw another kink in things, Jason, Colby, Landon and I are supposed to be leaving on a cruise in less than 24 hours. If he just has a virus, then he can be kept hydrated by my mother or sister, but if he has Kawasaki and has to go into the hospital for two days of treatment, then I'm not going on the trip. Ugh, what to do, what to do?? At ten that night, we finally decide with the doc to take him home and if he has a fever to bring him back on Sunday. I take him home and he is nauseous and throws up almost the whole way home, but he does actually sleep the whole way night.
On Thursday to top things off, Marci brings up Dallin's best friend Grayson to see him and they actually get down on the floor and play. It made me cry and I was so grateful to see him cheering up. And then by around 4:30 when he still hasn't had a fever and is eating and drinking better, we get to head home. We come home to a heart-attacked house and enjoy just being together as a family again.
He has to keep taking a low dose of aspirin and we have to follow up with the cardiologist in a few weeks, but he looks so much better and I am so grateful. We are in the process of trying to get a postponement for the cruise and hopefully someday I'll know why we weren't meant to go on that trip. But for now, I am just happy for a healthy boy. I am so grateful for God and good medical peeps and amazing friends and family and for finally getting to see the bright eyes and beautiful smile of my Dallin again!